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Autism - What Next?

 
Autism: Hope After Diagnosis: www.talkaboutcuringautism.org/video/hope-video.htm
 

SO YOU HAVE THE DIAGNOSIS -- NOW WHAT?

This information is meant to give purposeful direction to parents in the those of anxiety and remorse when they receive the initial diagnosis of Autism Spectrum Disorder (PDD-NOS, PDD, Aspergers/Autism) or before a diagnosis, when there is suspicion in the mind of parents or teachers. These suggestions are in no way to represent or take the place of medical advice.
  1. Immediately contact an Information and Referral consultant for Larimer County. They can give you information and names of parents willing to mentor and help other parents with suspicions or new diagnoses. Larimer County Human Services number is: 970-498-6300, and Autism Society of Larimer County is: 970-377-9640.

  2. Talk to more than one parent to ensure that you get all the unbiased information. Different therapies and interventions work for different children and it is your job to investigate them all thoroughly so you can make the best decision for your child. Call us at: 970-377-9640, and join our listserver at: fortcollinsaspergers_autism@yahoogroups.com

  3. Call your district's Special Education office and ask to speak to an eligibility coordinator. Let them know you suspect your child has delays or possibly autism and ask for an evaluation. They will provide one FREE.

  4. To begin learning about the special education law and your child's rights visit: http://www.edlaw.net/ http://www.wrightslaw.com/

  5. Investigate options that are available to help your child learn. Learn the benefits and differences in ABA / TEACCH / Miller Method / Higashi Method / Floortime / PECS / Social Stories. Web sites to get you started include the following.
    http://www.autisminfo.com/aba.htm
    http://www.teacch.com
    http://www.apa.org/monitor/sep99/pi4.html
    http://www.millermethod.org
    http://www.bostonhigashi.org
    http://members.tripod.com/~RSaffran/aba.html
    http://www.floortime.org http://trainland.tripod.com/pecs.htm non verbal communication

  6. Research biomedical interventions for children with autism. Sensible Action For Ending Mercury-Induced Neurological Disorders:
    Autism Research Institute
    Thoughtful House
    Generation Rescue

  7. Research biomedical testing. These labs have a proven track record of providing specialized testing for ASD abnormalities:
    Great Plains Labs
    Geneva Diagnostics (formerly Great Smokies Diagnostics Lab)
    Doctors Data
    MediGenesis
    Thoughtful House
    Pfeiffer Treatment Center

  8. Give thought to biomedical interventions (diet & supplements). Learn what you can about them. If you go this route, make sure that you are working in conjunction with a licensed nutritionist or your child's pediatrician if you aren't yet working with a DAN! doctor to make sure that your child's nutritional needs are being met.

    Join D.I.S.H. (Dietary Intervention Support and Hope)
    This group is open to anyone who is inquiring, starting our or is a veteran of the gluten-free casein-free diet and biomedical interventions. Contact: Phyllis Zimmerman, 970-206-4979 or dzerman2@yahoo.com

    Gluten-free/Casein-free diet
    Gluten-free/Casein-free recipes

    GFCF Books:
    Special Diets for Special Kids
    Feast without Yeast

    Additional Special Diet Resources:
    Specific Carbohydrate Diet
    Special Foods (a program and online GF/CF food resource)
    Implementing GF/CF Diet

    Bobs red Mill (order gluten-free flours and grains)

    Please see our Biomedical page for more resources on biomedical support!

  9. Read some introductory books on autism. The ASLC has a lending library and our local libraries have a number of titles as well. Here are our "top ten" recommendations to get you started:

    1. Autism Treatment Guide, Third Edition by Elizabeth K Gerlach (this is a book that the ASLC offers for first time parents)

    2. Facing Autism: Giving Parents Reasons for Hope and Guidance for Help by Lynn M. Hamilton

    3. Healing the New Childhood Epidemics: Autism, ADHD, Asthma, and Allergies: The Groundbreaking Program for the 4-A Disorders by Kenneth Bock and Cameron Stauth

    4. Autism Spectrum Disorders: The Complete Guide to Understanding Autism, Asperger's Syndrome, Pervasive Developmental Disorder, and Other ASDs by Chantal Sicile-Kira and Temple Grandin

    5. Could It Be Autism?: A Parent's Guide to the First Signs and Next Steps by Nancy Wiseman

    6. The Autism Sourcebook: Everything You Need to Know About Diagnosis, Treatment, Coping, and Healing by Karen Siff Exkorn

    7. The Official Autism 101 Manual by Temple, Ph.D. Grandin, Anthony, Ph.D. Attwood, Darold A. Treffert, and Bernard, Ph.D. Rimland

    8. Autism: Effective Biomedical Treatments (Have We Done Everything We Can For This Child? Individuality In An Epidemic) by Jon Pangborn PhD, Sindey M Baker MD, and Bernard Rimland PhD

    9. Understanding Autism For Dummies (For Dummies (Health & Fitness)) by Stephen Shore, Linda G. Rastelli, and Temple Grandin

    10. Asperger's and Girls by Tony Attwood, Temple Grandin, Teresa Bolick, and Catherine Faherty

  10. There is active research on a suggested link between the MMR vaccine and some forms of Autism:
    MMR
    Vaccine Info
    T.A.C.A.(Talk About Curing Autism)

  11. Locate and talk to parents who have done specific treatments and therapies -- check out the Support Groups section.

    List : fortcollinsaspergers_autism@yahoogroups.com also: Autism Society of Larimer County Phone number 970-377-9640

  12. Remember that as parents of a child with autism, you need time to understand and accept this diagnosis. There is pain and grief that you may have to deal with during this time. Find support from other parents and from your family. Do not try to do this alone.
 
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